Learning to live with heart disease really isn't all that bad. When I hear the news that someone I know has a family member diagnosed with stage four cancer, or cancer of any type I am truly sad.
It is especially hard when I have a family member that is also diagnosed with cancer. For me, having heart disease, even though in it's own right presents its own problems is still quiet taxing.
Some how through the years I have learn just how to manage my everyday exsistences. For anyone with a horrific health issue day to day living is a challenge.
I don't know how people who have been told that they have stage four cancer get through each and everyday.
Understanding that our lives are constantly changing and not always for the better is difficult at best. I only know that if I didn't have some form of faith to see me through each day I doubt that I would push myself as hard as I do to make every single day as good as it can be.
Living with any type of disease is hard, but thanks goodness my faith gives the strength to endure.
I pray for all of those around the world that are enduring difficult times right now. I hope that each of you can find just a small ounce of your own hope to hold on to.
Until there is a cure for what ever ails you, may God be a guiding force behind the sunshine that still burns brightly on your spirit and soul.
One thing I have learned, having heart disease isn't so bad, after all I could be dying for cancer.
So far, so good.
May the peace of the Lord be with you all.
CJ
Wednesday, August 6, 2014
Friday, August 1, 2014
The Pains of Protein S Deficiency
Not many people in the world actually know about Protein S Deficiency. For those of us, and the percentage is very low that have it , it can be quiet painstaking at times.
In short having a rare clotting syndrome is hard to deal with.
So many cardiac patience are use to being on anticoagulants. Many patience may take Warfarin or Coumadin. Some people may only have to take an aspirin, or may be just a baby one at that.
For me, having this strange and very untreatable clotting disorder requires me to take 3 anticoagulants daily. Not so bad some of you may say. Perhaps not, but think about this.
For the last 15 years almost every week of my life I have had to go either the hospital or to my doctors' office and have what is known as a Pro-time in order to make sure that first of all I'm not on the verge of bleeding to death or that I'm not at the point of maybe throwing a clot, which by the way would be very bad for me. I'm always worrying if everything is okay.
I can not tell you how many times I have shown up for my Pro-time only to find out that I indeed was in a very bad place clotting wise. You see there is a scale that they use for my clotting time as it is called. In order for me to be safe my blood should begin to clot or thicken between 2-3 seconds.
So what you might ask? Then there could be a chance that I am in danger of something pretty awful happening to me if I'm out of sink with that clotting time.
Having heart disease can have so many faces. Not only do I worry about the possibility of having another heart attack, but I also worry that at anytime my blood could also become my enemy.
There's no way around what I must do to insure that I have as healthy of a chance as I can to survive. Going as often as I need to in order to check my clotting time is just one small part of the whole program that allows me to continue to live.
One thing that I've learn from my experience with heart disease is this, I will do whatever it takes to insure that I do have another chance, to be a part of this life I have. This includes Protein S Deficiency and all that comes with it.
Looking forward to my next finger poke in a few days, until then I'm staying on the good side of life.
Peace out....
CJ
In short having a rare clotting syndrome is hard to deal with.
So many cardiac patience are use to being on anticoagulants. Many patience may take Warfarin or Coumadin. Some people may only have to take an aspirin, or may be just a baby one at that.
For me, having this strange and very untreatable clotting disorder requires me to take 3 anticoagulants daily. Not so bad some of you may say. Perhaps not, but think about this.
For the last 15 years almost every week of my life I have had to go either the hospital or to my doctors' office and have what is known as a Pro-time in order to make sure that first of all I'm not on the verge of bleeding to death or that I'm not at the point of maybe throwing a clot, which by the way would be very bad for me. I'm always worrying if everything is okay.
I can not tell you how many times I have shown up for my Pro-time only to find out that I indeed was in a very bad place clotting wise. You see there is a scale that they use for my clotting time as it is called. In order for me to be safe my blood should begin to clot or thicken between 2-3 seconds.
So what you might ask? Then there could be a chance that I am in danger of something pretty awful happening to me if I'm out of sink with that clotting time.
Having heart disease can have so many faces. Not only do I worry about the possibility of having another heart attack, but I also worry that at anytime my blood could also become my enemy.
There's no way around what I must do to insure that I have as healthy of a chance as I can to survive. Going as often as I need to in order to check my clotting time is just one small part of the whole program that allows me to continue to live.
One thing that I've learn from my experience with heart disease is this, I will do whatever it takes to insure that I do have another chance, to be a part of this life I have. This includes Protein S Deficiency and all that comes with it.
Looking forward to my next finger poke in a few days, until then I'm staying on the good side of life.
Peace out....
CJ
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