The Pains of Protein S Deficiency

     Not many people in the world actually know about Protein S Deficiency. For those of us, and the percentage is very low that have it , it can be quiet painstaking at times.
     In short having a rare clotting syndrome is hard to deal with. 
     So many cardiac patience are use to being on anticoagulants. Many patience may take Warfarin or Coumadin. Some people may only have to take an aspirin, or may be just a baby one at that. 
     For me, having this strange and very untreatable clotting disorder requires me to take 3 anticoagulants daily. Not so bad some of you may say. Perhaps not, but think about this.   
     For the last 15 years almost every week of my life I have had to go either the hospital or to my doctors' office and have what is known as a Pro-time in order to make sure that first of all I'm not on the verge of bleeding to death or that I'm not at the point of maybe throwing a clot, which by the way would be very bad for me. I'm always worrying if everything is okay. 
     I can not tell you how many times I have shown up for my Pro-time only to find out that I indeed was in a very bad place clotting wise. You see there is a scale that they use for my clotting time as it is called. In order for me to be safe my blood should begin to clot or thicken between 2-3 seconds.
     So what you might ask? Then there could be a chance that I am in danger of something pretty awful happening to me if I'm out of sink with that clotting time.
     Having heart disease can have so many faces. Not only do I worry about the possibility of having another heart attack, but I also worry that at anytime my blood could also become my enemy.
     There's no way around what I must do to insure that I have as healthy of a chance as I can to survive. Going as often as I need to in order to check my clotting time is just one small part of the whole program that allows me to continue to live.
     One thing that I've learn from my experience with heart disease is this, I will do whatever it takes to insure that I do have another chance, to be a part of this life I have. This includes Protein S Deficiency and all that comes with it.
     Looking forward to my next finger poke in a few days, until then I'm staying on the good side of life.
Peace out....
CJ